Sex and the City repeats are on and this episode was yesterday. Don’t lie to me – you probably recognize this phrase! It’s only one of the best episodes (Carrie falls on her face during the fashion show).
Charlotte sees her obgyn for “burning, stinging, itching” and is diagnosed with vulvodynia. She is prescribed an antidepressant and goes on her way. When she’s explaining her diagnosis later – that her “vagina is depressed” – the ladies have no idea what she is talking about.
So what is vulvodynia? Is it a real diagnosis, or just made-for-TV?
It’s a real medical diagnosis, and can be serious and debilitating in its worst form. But it’s not a straight forward or well defined problem either, and the diagnosis and treatment differ from one doctor to another. Basically, it’s pain in the vulvar region that can’t be explained by inflammatory, infectious, cancerous, or neurologic causes. That means it is a diagnosis of exclusion: all these reasons need to be ruled out before vulvodynia is ruled in.
That’s one problem in reaching the diagnosis: many tests and studies need to be done before you get the diagnosis. Patients get frustrated when the tests come back normal. The symptoms are bothersome and they know something is wrong – they want to know why the tests aren’t proving anything.
Another problem: patients often have difficulty describing their symptoms in detail. Symptoms are usually vague and generalized. Women may say it’s burning, itching, stinging, raw, constant. The severity of these symptoms differ from woman to woman.
Many of the symptoms are similar to a yeast infection, which happens to be the most common cause of vulvar pain. Women treat themselves without relief, and sometimes worsen the symptoms by doing so (topical yeast infection treatment, especially the shorter courses, can definitely cause irritation).
Am I alone?
If you have these symptoms, you are not alone. We think about 15% of women will have varying degrees of vulvodynia sometime during their lives. The National Vulvodynia Association puts this number at one in four women!
What causes it?
We don’t exactly know. We think it is related to estrogen in some way (women often experience vulvar pain when they are going through menopause). It may be from pelvic floor muscle dysfunction (the same muscles you use when doing your Kegal exercises). It may also be from a long standing neurologic injury, like an injured pelvic nerve during childbirth. The pain persists even when the injury is better (which is why no neurologic cause can be identified at time of evaluation).
So what is the treatment?
It varies, and there are many options.
Of course we never hear about Charlotte’s vulvodynia after this one episode, which is not normal. Most women diagnosed with vulvodynia in real life should continue treatment and care long term, the way you would with any chronic pain problem. Real lifers: establish a relationship with your gynecologist, and follow up. As you can see, there is no one correct treatment, so you and your doctor can try different treatments until you find the best one for you.
Source: ACOG Committee Opinion
Up to Date. Clinical manifestations and diagnosis of generalized vulvodynia and Treatment of vulvodynia
Google the National Vulvodynia Association for patient information.
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